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Hi - it has been awhile since I've posted anything. My son was found to be a CF carrier last summer and his GI believed that status was the reason for his fat malabsorption and gave him UltraseMT20. My son had serious neuro problems while on the enzymes. He was on them for 2 weeks and just...

Hi - another question about enzymes...if your pancreas is working fine and you take enzymes on the suspicion that pancreatic insufficiency is the reason for known malabsorption, does anything at all happen? Is it just totally benign if you don't need them, but if you do you see changes? Also...

Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E...

Hi - our GI doc put my son (single dF508 gene only - normal sweat test), on Ultrase MT 20 capsules due to positive fat malabsorption stool test and clinical evidence of fat soluble vitamin malabsorption. He just turned 4 this week, is 42 inches tall, and weighs 40 lbs. We take 3 capsules per...

Hi - Within the past two weeks we discoved my 4 year old son has a single deltaF508 deletion. Yesterday the full Ambry genetics data came back showing no other deletions/mutations, thank God! However, he is malabsorbing fats and fat soluble vitamins. Pancreatic enzymes are helping, indicating...

Hi, I posted the below under the topic summary "newly diagnosed" and someone suggested I try posting it under families as well to see if I get a response, so here goes: My 4 year old son had a postive fecal fat (sudan stain) test indicating malabsorption, a negative sweat test but has a...

Hi - my first post here. My 4 year old son had a postive fecal fat (sudan stain) test indicating malabsorption, a negative sweat test but has a heterozygous deltaF508 mutation. We are waiting on the Ambry amplified results to see if there is another. His only GI symptoms have been...