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A qu about Chest PT and reflux
Hi all, just wondering if anyone has been in this position. My little girl has CF (she is 6 months old) and we have been told to put a hold on chest PT until her reflux settles. Some days she is constantly throwing up; some days she is a bit better with little spit ups here and there (guaranteed... -
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DF508 and 3659delC anyone??
Hi all! I am not sure of the 'board etiquette' here and I am sorry if this post is intrusive to your board but I am just wondering if anyone has this particular combination of CF gene mutations? DF508 and 3659delC? My nearly 6 month old baby girl has this combination and I am just wondering if... -
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Another first-timer here
Hi! I have a 4 month old baby girl, Sienna (our first child) who was diagnosed with CF at 5 weeks, picked up by newborn screening. Neither my partner nor myself knew we were carriers-- we were shocked to learn that her sweat test was positive (we had convinced ourselves that it was going to be...