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My husband and I have wonderful 3 yr old twin boys, one is a carrier and one has CF. We would like to have another child and are exploring PGD as an option. The IVF center that we plan to use works with Reproductive Genetics Institute in Chicago for the pgd portion. Has anyone went through this...

My son is 19 months old and he cultured non mucoid pseudomonas for the first time. His pulm is starting him on tobi and an oral antibiotic. I understand that most with CF end up with pseudomonas at some point. For those of you with experience with this nasty bacteria, is this an early age to...

Hi everyone. This will be our second year raising money for CFF. Our son, with CF, is only 9 months old so we are pretty new to all of this. We did participate in the 2006 Great Strides walk, but since he was diagnosed in March and the event took place in May we had little time to raise money...

Does anyone know of someone who has the two mutations N1303K and Q493X. If so, I was wondering how this person is doing. I have found some information on N1303K, but very little information on Q493X. I'm not sure that it has even been classified yet. Any information would be helpful. Thanks.

After reading topic after topic I feel that is now time to join. Please fogive me if I say something that is not accurate, or if I have questions that I should know the answer to. Our family is new to CF. Like many parents of children with CF, we were not aware of being carriers. We were...