Search results

My son Tucker has had a significant decline in his PFTs over the past year. So at his last clinic visit they switched him from Pulmozyme to HTS. He was to be on the HTS 14 days and then go back for more PFTs. When we took him back, his PFTs dropped....again! Now he is back on the pulmozyme and...

I know I posted on this topic awhile back, but I have some more questions. Tucker went in for his 3 month check up a couple of weeks ago. His check up went fairly well, other than the fact that he hasn't put on one ounce since his last visit. This concerned the doc some, but he said we should...

Just wanted to share this with everyone. A friend of ours contacted us informing us about a website we could go to called www.songsoflove.org to get a free, personalized song on a CD for our son. You can fill the order form out online. It is actually really easy to do. I filled the form out...

Tucker went in for his 3 months check-up today and on the way home, had asked lots of questions about his CF. At first he asked, "Mom, how much longer will I have CF?" It broke my heart to hear him ask that. At first I didn't know quite how to respond, but I figured it was best to be honest...

Just me trying to figure out how to post a picture next to my signature. Hope i didn't get it too big. This picture was taken at the beach in Corolla, NC on our summer vacation this year. Can't wait to go back there! Hope the pic shows up okay.

Just a quick question for the parents of CF kids. Tucker is 6 1/2 and still wets the bed at night. I believe we have tried everything under the sun to help this situation, such as limiting his fluids after a certain time of night, waking him up in the night to go, putting him to bed without a...