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My six year old daughter was dx about 2 months ago w/CF and last week my 7 month old was dx w/ Atypical CF. They both have delts 508, 5T, 7T and 9T variants, I believe. The six year old is taking all the usual meds 3x a day. The 7th month old has only had 1 resp. infection and is not on any...

Hi. I just heard from my daughter's school dist. that they do not think that she needs a 504, I disagree! The dist. will grant and put all of my reasonable request in writing on the school "health plan" but will not grant a 504 at this time. The director of Special education feels that if she...

Has anyone experienced migrains as a side effect to CF meds? If so any quick treatments?

Just found out that my six year old daughter has CF. For the fast six years she has been treated for asthma. At birth she had a collapsed lung, RSV virus along with multiple trips to the ER w/ Resp. illnesses. It wasn't until the birth on my youngest that a positive CF gene was dectected...