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My ds was born in the 95% and now at 3 months is at the 13%. He obviously needs added calories to the breastmilk that he is receiving. The cf center that we have been going to has really pushed to fortify my breastmilk with formula. I have tried almost every formula including: enfamil lipil...

My infant son is newly diagnosed. No one in either side of the family (my husband and mine) knew about cf. I have to say that I am glad that my family has been so supportive and wants to learn about cf and the new lifestyle changes that we are making. I am thankful for my father and his new...

Sorry if this is TMI but we have been trying for almost 3 months to get my DS malabsorption problem taken care of. He started out with green foamy stools when he was diagnosed and it changed to loose orange oily stools with enzymes (creon 6,000). He has reached his max on enzymes so now he has...

Hi everyone. I would like to apologize in advance for the long post. Thank you to those that read it and reply. I have been on the site a few times and have read many posts. My son, 2 months, was diagnosed at 2 weeks. We have been to the St. Louis Children's Hospital twice and have gotten a...