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WE HAVE AN EMERGENCY On February 3, 2013, the Social Security Administration (SSA) proposed changes to medical eligibility criteria which, if enacted as is, would result in thousands of people with Cystic Fibrosis losing their Social Security Disability Insurance, SSI, Medicare and...

WE HAVE AN EMERGENCY On February 3, 2013, the Social Security Administration (SSA) proposed changes to medical eligibility criteria which, if enacted as is, would result in thousands of people with Cystic Fibrosis losing their Social Security Disability Insurance, SSI, Medicare and Medicaid...

First let me begin by saying that I have no affiliation with this company. I have a port and have been receiving my monthly port flush supplies (Dressing Change Kit & Huber Needle) from my home healthcare company for $100 per month. Medicare Insurance doesn't cover these expenses. After a...

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Aside from the horrible taste, I get a large amount of white residue on my tongue. It is so bad that I immediately have to stop my aerosol treatments to rinse/brush my tongue/mouth. Does anybody else have this problem? FYI, I mix 10cc sterile water w/ vial of Vanco and use 5 cc per treatment...

Hi there, I just switched to Zenpep and haven't noticed a change or increase in stools. However, I have had indigestion/heartburn lately and wondered if this is related to the switch or just coincidence. Curious for any feedback on Zenpep. Thanks Anthony

I used to not have any dental staining but now they are getting extreme. First let me begin by saying, like many others, I have had the yellowish stained teeth from day one. About 2 years ago, I noticed that my teeth were getting stained significantly faster than before. Now I notice that...

The purpose of this thread is for us to maximize the rewards from Zenpep. If you wish to debate which pancreatic enzyme is the best, please do so in another thread. However if your doctor is suggesting that you take this drug, then let's utilize the referral program to everybody's benefit...

The purpose of this thread is for us to maximize the rewards from Zenpep. If you wish to debate which pancreatic enzyme is the best, please do so in another thread. However if your doctor is suggesting that you take this drug, then let's utilize the referral program to everybody's benefit...

I currently use the eflow for 5 aerosolized medications and have signed up for Aztreonam. It is my understanding that I will get the Altera inhalation device for the Aztreonam. Are Altera and Eflow the same thing? Do I really need both devices for my soon to be 6 treatments? Thanks in advance...

I need a ultrasonic cleaner for the disk heads. Any personal recommendations? Which model? What cost? Where did you buy it? Thanks in advance.

Any suggestions on what is the best mask to prevent swine flu and where to order it online at the best price? I will be flying in a couple of weeks and want to take all the precautions available... Thanks in advance...

I would like to start aztreonam but understand that unless you were in the original study that you can't receive it. However, I heard about the "Expanded Access" program and was wondering if anybody was familiar with it which gives non-participants access to this drug while waiting for FDA...

I have been experiencing a tight chest and feel like I am trapping air. Just curious if anybody has had these side effects associated with aerosolized vancomycin? Thanks in advance

Hi there, I am a 43 year old adult with CF and started to lose my sense of taste/smell about 6 months ago. In general, my health has been pretty good overall without any IV treatments recently. After seeing my ENT she prescribed oral antibiotics which didn't help. Then we did sinus surgery 6...