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Ennio was due to start as our Cold Fusion programmer....next Monday. I emailed him on Sunday with all the problems we had on the site and he said "I know..." Two simple words...spoke volumes to me. He was watching us and he cares! He told me he got permission from his professors to leave...

For those of you concerned about our Cold Fusion programming issues, we have a new programmer joining us on March 26th...Ennio! Welcome soon! Hurry Up! We'll limp along till then...know we're working! For those of you who didn't get our latest newsletter <a target=_blank...

Neil and Justin and I are on now...please join us we're talking about CHAT!

This has been a beautiful effort...from Lang's Designs working closely with SarahK. A special thank you to Neil for getting this altogether. Enjoy! Jeanne

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=17231&catid=175">Jeanne's blog</a> We've been working hard the past month, on a new look and feel for our site! Jeanne

I thought you would enjoy this story. I just came from dinner..a small Japanese Restuarant in West Caldwell, NJ. We like Sushi and it's our favorite. The chef worked with my son Andrew in NYC...and I was talking to Peter about the food and some museums...we had already finished talking about...

I try to find relevant advertisers for our site. Sometimes people sneak in for "free advertising". They usually get an email explaining the advertising process. This site is available because I have personally kept it going in spirit and money for 11 years. Relevant sponsors are finding...

our podcast...we should win this one! This builds CF Awareness! A note from the BEF Happy New Year Everyone! Thanks to your votes, we ended up at #1 again in the health podcasts for the month of December and #20 overall out of 27,252 podcasts!!!!!! And now, it's 2007!!!!!!!! PLEASE vote...

Happy Birthday!

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We do our best to protect everyone's privacy. We are presently wary of a recent solicitation for "participating in a study" (this morning and last night). We have banned their known IP address. We have reported them. We cannot verify the validity or veracity of the solicitor. We suggest...

Had to let you know...today is my daughter Sarah's 35th birthday and she'll be running the marathon with the Boomer Esiason Foundation in NYC in November. I thought it was a good idea to have shirts made with the appropriate images...on them for a birthday surprise for her at the family dinner...

Visit us there! <a target=_blank class=ftalternatingbarlinklarge href="http://www.esiason.org">www.esiason.org</a> This adds immeasurable value to all of us! It's an honor to be recognized by an organization that has raised 45 million dollars for the fight against cystic fibrosis! Please join...

A Word to the Wise is Sufficient! This is what Grandma MLBurke always said.... This is a note I've been contemplating, hoping I didn't have to send...but it's probably very good to clear the air! I have provided this site to the community of people with cystic fibrosis, their families and...

I am having a terrible time getting workers compensation insurance privately and through the state. Do you have any suggestions? I am told that our employee is a liability for any insurance agent to cover. He is just a part time employee that works 20 hours a week in retail and no one will...