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Dear Members and Friends of CysticFibrosis.com, Many of you may already have noticed the presence of Chris Baldwin here at the forums. I met Chris on LinkedIn during the spring of 2013. As many of you know, in my “other life”, I am a “domainer”. I began my career on the web in 1996...

Happy 4th of July to all the USA members and we hope you enjoy your day. Peter and took our walk in Verona Park to celebrate...love the birds! The Independent black crowned night heron...born precocial...and the little baby ducklings needing their mom all adorable. just different styles of...

http://ir.ptcbio.com/releasedetail.cfm?ReleaseID=856937

http://mashable.com/2014/06/17/bionic-pancreas/

I guess, remembering my dad, Jack Burke is a really important memory for me...especially here as I know I got the gift of computers and programming from him. He was an original, a Senior Method Analyst at Prudential Insurance Company back in the 1950s! I grew up with technology and am always...

I noticed this centers news this past MAy....http://www.sciencedaily.com/releases/2014/05/140517085811.htm Looking for other centers....

http://www.cysticfibrosisnews.com/tobramycin-use-examined-in-young-children/?utm_source=All&utm_campaign=CF-June+3%2C+2014+All+but+Canada&utm_medium=email

http://campaign.r20.constantcontact.com/render?ca=fdc0ef70-a3e5-4cb0-aa01-458533de3026&c=ee129cf0-35ca-11e3-802e-d4ae527536d1&ch=ef2da9e0-35ca-11e3-80ec-d4ae527536d1

http://medcitynews.com/2014/05/vinod-khosla-has-more-predictions-about-future-of-healthcare/

http://www.ted.com/talks/lee_cronin_print_your_own_medicine?utm_source=email&source=email&utm_medium=social&utm_campaign=ios-share#t-168438

http://ir.ptcbio.com/releasedetail.cfm?ReleaseID=848453

For all of you who remember the stories Jane would tell in her archived blogs here...we cried and laughed and celebrated Jesse's life with Jane through her stories. Jesse died waiting for new lungs this week. Peter and I especially remember meeting the family and taking them on our tour of...

I always think Sarah Kay is inspirational..spoken word poetry it's called. Even if like me, you've seen this 20 times, I offer it as some great thoughts on nurturing, mothering, fathering for daughters and sons...I'm sure that this kind of love isn't gender specific and when I gave this poem in...

For those of us celebrating today... Alleluia, He is Risen! This is a place, where people "dance with fear" everyday! This TedTalk may be interesting to all! Salt and Light, Jeanne http://www.ted.com/talks/chris_hadfield_what_i_learned_from_going_blind_in_space

Let me start by saying how helpful I’ve found the cysticfibrosis.com website. It has provided a place where I can read how others cope with experiences and situations similar to those I go through. Hopefully some of my comments have also been of some use to them. The real purpose of this...

Here at cysticfibrosis.com it happens all the time! http://sethgodin.typepad.com/seths_blog/2014/04/search-vs-discovery.html

http://www.people.com/people/mobile/article/0,,20802536,00.html

— researchers at the Hubrecht Institute in the Netherlands showed they could fix a mutation that causes cystic fibrosis. http://www.nytimes.com/2014/03/04/health/a-powerful-new-way-to-edit-dna.html?ref=health?src=dayp&_r=0

http://myemail.constantcontact.com/SOTW-Making-A-Difference.html?soid=1101822068091&aid=DRUGXXbZvpo#fblike

Community: My high school friend Dennis's wife had a stroke almost 2 years ago. She had worthless care in a system that failed every step of the way. Dennis is frantic, asking all his friends for help.... Well I was sure, I could find a good on line support group (like ours) only for stroke...