Recent content by Lak7

I have asked the doctors about kalydeco and will hopefully have an answer in the morning. Thank you!

Thank you for your response! The second mutation is DeltaF508.

I'm not sure of the second mutation. It was found in the newborn screening. Then a sweat test at age two at cf clinic Le Bonheur in Memphis, TN. Every time was and is for pancreatitis. The doctors had an MRCP ran today which showed showed no blockages in the ducts that it is the pancreas just...

I'm new at this. My daughter is 9 yrs old pancreas sufficient. Her mutation is R117h. For the past year we have been admitted into the hospital five times. The last three times have been within the last month. All the doctors keep tell us is this is the way it will be for us until the...