Recent content by Faith4Liliana

It has been a while since I have posted on here. Life has gotten busy and we seem to be running in every which way. Liliana is struggling with 2 lung infections. But we are pushing through each day. She is also losing weight... :( Please keep us in your prayers. Here is an updated picture of...

Hi Everyone! How is everyone doing? It's been a while since I have been on here and I miss chatting with you all. But I wanted to see if I could get some feedback on Pseudomonas. Liliana has cultured Pseudomonas for the first time. We got the call yesterday. They are starting her on Tobi for 28...

Hi Everyone! How is everyone doing? It's been a while since I have been on here and I miss chatting with you all. But I wanted to see if I could get some feedback on Pseudomonas. Liliana has cultured Pseudomonas for the first time. We got the call yesterday. They are starting her on Tobi for 28...

Hi Everyone! How is everyone doing? It's been a while since I have been on here and I miss chatting with you all. But I wanted to see if I could get some feedback on Pseudomonas. Liliana has cultured Pseudomonas for the first time. We got the call yesterday. They are starting her on Tobi for 28...

Hi Everyone! How is everyone doing? It's been a while since I have been on here and I miss chatting with you all. But I wanted to see if I could get some feedback on Pseudomonas. Liliana has cultured Pseudomonas for the first time. We got the call yesterday. They are starting her on Tobi for 28...

Hi Everyone! How is everyone doing? It's been a while since I have been on here and I miss chatting with you all. But I wanted to see if I could get some feedback on Pseudomonas. Liliana has cultured Pseudomonas for the first time. We got the call yesterday. They are starting her on Tobi for 28...

I live in Saint Augustine, Fl and also have BCBS PPO and am having the same plm. I got a letter on Friday from Nemours saying that they haven't come to an agreement and as of Jan 1st my ins is an out of network ins. I am looking into CMS and Nemours Funding. We applyed for Medicaid after I got...

I live in Saint Augustine, Fl and also have BCBS PPO and am having the same plm. I got a letter on Friday from Nemours saying that they haven't come to an agreement and as of Jan 1st my ins is an out of network ins. I am looking into CMS and Nemours Funding. We applyed for Medicaid after I got...

I live in Saint Augustine, Fl and also have BCBS PPO and am having the same plm. I got a letter on Friday from Nemours saying that they haven't come to an agreement and as of Jan 1st my ins is an out of network ins. I am looking into CMS and Nemours Funding. We applyed for Medicaid after I got...

Merry Christmas and a Happy New Year to everyone!!!

Merry Christmas and a Happy New Year to everyone!!!

Merry Christmas and a Happy New Year to everyone!!!

Yes I was in tears too. The whole getting her wish to come true thing got to me. I just picked Liliana up, cried and held her close as we danced. Every parent should get to see their child's wish come true.

Yes I was in tears too. The whole getting her wish to come true thing got to me. I just picked Liliana up, cried and held her close as we danced. Every parent should get to see their child's wish come true.

Yes I was in tears too. The whole getting her wish to come true thing got to me. I just picked Liliana up, cried and held her close as we danced. Every parent should get to see their child's wish come true.