Recent content by DannysMom

I just found out that Viokase is not being made anymore.. Does anyone have any suggestions on how to give Enzymes with night feedings?? His feeds go about 10 hours at night through his g/j tube...I just can not see how he will not malabsorb unless he gets enzymes every 2 hours.. viokase was...

I just found out that Viokase is not being made anymore.. Does anyone have any suggestions on how to give Enzymes with night feedings?? His feeds go about 10 hours at night through his g/j tube...I just can not see how he will not malabsorb unless he gets enzymes every 2 hours.. viokase was...

I just found out that Viokase is not being made anymore.. Does anyone have any suggestions on how to give Enzymes with night feedings?? His feeds go about 10 hours at night through his g/j tube...I just can not see how he will not malabsorb unless he gets enzymes every 2 hours.. viokase was...

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon. Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long are you on...

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon. Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long are you on...

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon. Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long are you on...

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon. Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long are you on...

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon. <br /> <br />Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long...

I feel guilty that I am not giving enough attention to my younger son who doesn't have the CF.. Just recently, Danny was admitted for 2 weeks and the first week we were shuttling Matt from one grandparent to the other.. Then I noticed how clingy and emotional he was when I was home with him...

I feel guilty that I am not giving enough attention to my younger son who doesn't have the CF.. Just recently, Danny was admitted for 2 weeks and the first week we were shuttling Matt from one grandparent to the other.. Then I noticed how clingy and emotional he was when I was home with him...

I feel guilty that I am not giving enough attention to my younger son who doesn't have the CF.. Just recently, Danny was admitted for 2 weeks and the first week we were shuttling Matt from one grandparent to the other.. Then I noticed how clingy and emotional he was when I was home with him...

I feel guilty that I am not giving enough attention to my younger son who doesn't have the CF.. Just recently, Danny was admitted for 2 weeks and the first week we were shuttling Matt from one grandparent to the other.. Then I noticed how clingy and emotional he was when I was home with him...

I feel guilty that I am not giving enough attention to my younger son who doesn't have the CF.. Just recently, Danny was admitted for 2 weeks and the first week we were shuttling Matt from one grandparent to the other.. Then I noticed how clingy and emotional he was when I was home with him...

His overnight feeds start anywhere from 8-9pm and go till 6-7am..at 100ml over 10hours getting in around 1500 cals. We mix Viokase powder in his formula.

His overnight feeds start anywhere from 8-9pm and go till 6-7am..at 100ml over 10hours getting in around 1500 cals. We mix Viokase powder in his formula.